Welcome!!! Posted on September 16th, 2008
Hi! I write these first words on this blog as those that will change the face of brain cancer as we know it! It’s the beginning of a change - a slow change - but a change nonetheless! Together we will fight for a cure for oligodendrogliomas … and ultimately for primary brain tumors … so that those of us who have it may be granted a long and happy life.
But, before I go on, I would be remiss if I did not thank Cris Bragar and his colleagues at Iventagroup. Cris and his team designed this website and its functionality. I have to say that I love the look and feel of the site and I hope you do as well. So, Cris, to you and to your team, THANK YOU FOR ALL YOUR HARD WORK!! This would not have gotten done so well without you.
And, I’d also like to thank my friend, Mark Dunn. Despite having a never-ending list of things he has to do to keep his business running, Mark has played a critical role in helping develop the ideas behind this website and he has been tireless in his support of this cause. Thank you, Mark!
This website, our fundraisers, and our research have begun to build momentum and we are setting our sites on building on this momentum. I hope you’ll revisit this blog regularly, becayse, over the next several weeks, months, and years, this blog will bring you some interesting news, in-depth research, ways you can help in this fight … and, finally, a cure! Here are just a few of the highlights that you will see:
- Our initial designs on our other websites
www.gotbraintumor.com and
www.shoopstroops.com - sites that will be dedicated to research into primary brain tumors in general (to find the link between them all) and which will connect the medical community, pharamaceutical companies, survivors, and families in a way that has never been done before.
- New fund-raising events for oligodendroglioma research, including benefit horse shows, foot races, bicycle races, adventure races and others.
- A network of survivors who will share their stories and the experiences as we coalesce into an army that will overcome this disease. This network of survivors will serve as the backbone of a large epidemiological study into the origins of oligos, best-in-class treatments, long-term survival hints, and more.
- The creation of “Shoop’s Troops” - an army of people who will fight brain cancer as a team.
Though this is my first post, you will most definitely be seeing more over the coming days. Tell me your stories, ask me for advice, connect with medical professionals, give me ideas, lend me your expertise, share with me your knowledge, your hopes, your expertise. Together we will conquer this disease. And, finally, I solicit your feedback on the site, ideas for directions that should be pursued, and this blog.
And, finally, I would like to thank all of you for your continued support! Without you, this fight is nothing. If I have any legacy at all, it is all of you who I count as friends!!
Very Respectfully,
Marvin
Filed under: Welcome