E-news from the National Brain Tumor Society Posted on October 3rd, 2008
Hey all, here’s the latest from the National Brain Tumor Society.
We are now the National Brain Tumor Society!
National Brain Tumor Foundation and Brain Tumor Society have merged to form the largest organization that funds innovative brain tumor research and offers comprehensive, supportive care to those affected by brain tumors. Later this year, we will introduce the new look of the National Brain Tumor Society. For more information as we work towards this integration, visit: http://www.braintumor.org/news_article/?p_NewsId=126261
Regional Patient Conference in Omaha, NE – November 15, 2008
Join us November 15th in Omaha, NE for our Regional Brain Tumor Conference. Offered in collaboration with Alegent Health, this important day-long educational event will feature multi-disciplinary presentations about tumor types and treatments. In addition, attendees will have the opportunity to network and connect with other patients and their loved ones. For more information and to register, please visit: http://www.braintumor.org/event/?p_Event=132275
Teleconference on Glioma Treatments for Patients and Families - December 2, 2008
As part of our 12th Annual Teleconference Series, Howard Fine, MD, Chief of the Neuro-oncology Branch of the National Cancer Institute will speak on treatment updates for malignant gliomas. The teleconference will take place on December 2, 2008 at 1 p.m. PST / 4 p.m. EST. Click here to register
Save the Date! Patient Conference in San Francisco, CA – January 24, 2008
Join us in San Francisco, CA for our Regional Brain Tumor Conference. Be sure to check out our website for more details coming soon, http://www.braintumor.org/EventsCalendar/
October 4th, 2008 at 3:48 pm
Hi Marvin.
Thanks for your comment on my blog, and asking about my husband, Chad.
Chad was diagnosed November 12, 2007 with a large oligo and a smaller (unbiopsied) tumor on the left temporal lobe. We suspect it’s also an oligo. We’ve been told it’s probably been there about 10 years or so. Chad is young & healthy - so we have that on our side, along with a positive outlook.
He started chemo (Temodar) in February, and just came off of Round 8.
He had a biopsy done back in November, but due to the size & location, the tumor cannot be removed. It’s fairly large (9cmx6cm) and crosses the midline. We’ve been told that Temodar gives the best results with patients who have the 1p19q deletions - which he has, but as of our last MRI, the tumor has not changed at all. We are quite frustrated with the lack of results so far, but are also thankful that his disease is stable at this point. We plan to go thru with Temodar for a full year, since all of our research suggests optimum results at 12-18 months.
Chad is doing extremely well. He started driving again in April, and goes to/from work. His seizures are kept under control with max doses of Keppra at this point. Honestly, you would never know he was “sick” unless you saw the MRI.
Thanks for directing me to your site. Our doctors have been a little hesitant to give us any kind of timeline, since he is doing so much better than his medical team thought he would be. He was first diagnosed as a GBM patient - which terrified us. We were quite relieved to learn we had more time! I hate to think of things like that, but it forces us to make the most of our daily life with our children.
Wishing you luck!
Skye Lanford
http://thelanfords.blogspot.com